Below are some links to sites where one can find information or help for chronic or serious illnesses. There are only a few links right now, but we look forward to adding more soon.
Note: We do not necessarily endorse all the contents of the websites listed below. Links are given for informational purposes only.
Note: We do not necessarily endorse all the contents of the websites listed below. Links are given for informational purposes only.
Arthritis
Arthritis Connect
This is an online support group for individuals with arthritis. The site also has a Health Center with helpful information, as well as articles on "Living with Arthritis," videos, and recipes.
Multiple Sclerosis
My-Ms.org
An easy to use site with helpful links and information that is easy to understand.
Suddenly MS
A blog with lots of useful tips and good information for people with MS, people who may have MS, and caregivers of people with MS.
Recipes to Fight MS
A blog with recipes and tips for individuals with MS who are seeking to maintain or improve their well-being by eating a healthy diet.
Slideshare of Demyelinating Disease
The above link is to a PowerPoint presentation about MS and other demyelinating diseases. It is very informative.
Pass the MS Please
Very well written blog that gives a lot of helpful information and explanation of symptoms as they unfold in the author's life. It is serious, yet written from a slightly humorous perspective and keeps a cheery outlook on life.
Ehlers-Danlos Syndrome
Ehlers-Danlos Syndrome Network C.A.R.E.S. Inc.
A research, education, and support foundation for children and adults
POTS and Dysautonomia
Dinet.org
Good Pasture’s Syndrome
http://en.wikipedia.org/wiki/Goodpasture%27s_syndrome
Support Group
http://health.groups.yahoo.com/group/goodpasturesyndrome/
This one is small – still new?
http://www.dailystrength.org/c/Goodpasture-Syndrome/support-group
Auto Immune Vasculitis
Support Group
http://www.experienceproject.com/groups/Have-Vasculitis-Autoimmune/91074
http://www.inspire.com/groups/autoimmune-diseases/discussion/autoimmune-vasculitis/
Diabetes
Support Group
http://www.diabeticconnect.com/
This one has a link to a support group for kids with diabetes
http://diabetesgirl.tripod.com/
Mast Cell Activation Syndrome
Support Group
http://www.inspire.com/groups/rare-disease/discussion/mast-cell-activation/
Support Group (with informational videos) –
http://www.rareconnect.org/en/community/mastocytosis-and-mast-cell-activation-disorders
Up to date information on MCAS
http://www.uptodate.com/contents/mast-cell-activation-disorders
Dystonia
American Dystonia Society
Self Harm or Self Injury:
Door of Hope for Teenagers
Arthritis Connect
This is an online support group for individuals with arthritis. The site also has a Health Center with helpful information, as well as articles on "Living with Arthritis," videos, and recipes.
Multiple Sclerosis
My-Ms.org
An easy to use site with helpful links and information that is easy to understand.
Suddenly MS
A blog with lots of useful tips and good information for people with MS, people who may have MS, and caregivers of people with MS.
Recipes to Fight MS
A blog with recipes and tips for individuals with MS who are seeking to maintain or improve their well-being by eating a healthy diet.
Slideshare of Demyelinating Disease
The above link is to a PowerPoint presentation about MS and other demyelinating diseases. It is very informative.
Pass the MS Please
Very well written blog that gives a lot of helpful information and explanation of symptoms as they unfold in the author's life. It is serious, yet written from a slightly humorous perspective and keeps a cheery outlook on life.
Ehlers-Danlos Syndrome
Ehlers-Danlos Syndrome Network C.A.R.E.S. Inc.
A research, education, and support foundation for children and adults
POTS and Dysautonomia
Dinet.org
Good Pasture’s Syndrome
http://en.wikipedia.org/wiki/Goodpasture%27s_syndrome
Support Group
http://health.groups.yahoo.com/group/goodpasturesyndrome/
This one is small – still new?
http://www.dailystrength.org/c/Goodpasture-Syndrome/support-group
Auto Immune Vasculitis
Support Group
http://www.experienceproject.com/groups/Have-Vasculitis-Autoimmune/91074
http://www.inspire.com/groups/autoimmune-diseases/discussion/autoimmune-vasculitis/
Diabetes
Support Group
http://www.diabeticconnect.com/
This one has a link to a support group for kids with diabetes
http://diabetesgirl.tripod.com/
Mast Cell Activation Syndrome
Support Group
http://www.inspire.com/groups/rare-disease/discussion/mast-cell-activation/
Support Group (with informational videos) –
http://www.rareconnect.org/en/community/mastocytosis-and-mast-cell-activation-disorders
Up to date information on MCAS
http://www.uptodate.com/contents/mast-cell-activation-disorders
Dystonia
American Dystonia Society
Self Harm or Self Injury:
Door of Hope for Teenagers
Recommended Books:
My Beautiful Broken Shell - a good book for anyone going through difficult times, serious or chronic illness, or suffering from a broken heart
(Link is to Christianbook.com. I am not affiliated in any way with CBD. Link is provided for informational purposes only.)
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